Family of infant with rare heart disease, seeking support - KWWL - Eastern Iowa Breaking News, Weather, Closings

Family of infant with rare heart disease, seeking support


Just four months ago Molli and Matt Burns brought a new life into the world.

The Janesville couple is trying to come to terms with their newborn's diagnosis of Anomalous Left Coronary Artery from the Pulmonary Artery (ALCAPA), a rare heart defect.

“It's kind of been a big shock,” said Matt. “He's been a strong boy from the beginning, and this might be a little set back, but i think it won't take him too long to get back up and going again.”

Four-month old Gabriel Burns is pulling through the rare heart defect causing poor cardiac function, and without surgery most babies don’t survive.

In just four days, baby Gabriel has gone through surgery and procedures, forcing Molli and Matt to be hours away from home for days, and they may stay in Iowa City longer just to be with their little fighter.

“The term fighter has been used on his Facebook group multiple times. It hurts a little bit to see him the way he is, but i know he's going to get better,” said Matt.

Gabriel’s physician, Sameer Kamath, M.D., says Gabriel is nothing short of a fighter.

“He's for sure a trooper. He unfortunately was born with this condition and has had trouble talking with the family,” said Kamath.

It was last Thursday when the Burns’ say they thought baby Gabriel had a simple ear infection. 

However, the quick trip to the doctor led to this startling diagnosis.

“A lot of people are saying he's strong, and he's going to pull through,” said Molli.

Kamath says if Gabriel’s parents wouldn't have noticed the symptoms now, it could have become worse.

He says it's not uncommon for doctors to miss the diagnosis because it is a very rare condition.

If you would like to help with medical costs or just give support to the Burns family CLICK HERE.

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