Waterloo boy doesn't let PKD slow him down - KWWL - Eastern Iowa Breaking News, Weather, Closings

Waterloo boy doesn't let PKD slow him down


by Danielle Wagner

WATERLOO (KWWL) Hockey is Cooper Delveau's favorite sport. He's even having a hockey-themed birthday party when he turns seven on April 3rd.

On the outside, Cooper looks like your average little boy. But inside, he's fighting a form of Polycystic Kidney Disease or PKD.

"In Iowa City I had a routine ultrasound to check his heart at 20 weeks and noticed the kidneys were large and whiteish," said Kelly Delveau.

Cooper Delveau wasn't expected to live very long after birth. But almost seven years later, his kidneys are functioning, for now.

"His kidneys will shut down. He will have dialysis and will need a transplant," said Kelly Delveau.

Cooper takes a blood pressure medicine, drinks more water and goes to the restroom more often.

"He gets ultrasounds about every year, and you definitely see the kidneys are large and have several cysts on them," said Kelly Delveau.

But Cooper doesn't let PKD slow him down.

He's in first grade, he's in a hockey league and he takes trampoline and tumbling classes. He just has to be careful not to rupture a cyst.

Mom Kelly Delveau hopes hearing her son's story inspires people to become organ donors or sign up to be a living kidney donor, since it's something her family will need one day.

"Emotionally and mentally, you take one step at a time, and you're extremely grateful for what you've got," she said.

Right now, Cooper is just grateful to play hockey.

"He's a wonderful, well-rounded, athletic boy who has a disease, but the disease does not have him," said Kelly Delveau.

For more information on National Kidney Awareness Month and PKD, click here.

Reporter: Danielle Wagner

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